This is a somewhat infrequent look at our journey of raising a child with Apert Syndrome.

Surgeries, recoveries, accomplishments, and pictures are all here. Information is power! There was an error in this gadget. Thursday, May 19, 2011. New nieghbors, new kids. We were so worried about sid and sophie meeting kids, reactions. thank you God for good neighbors.

Thursday, August 12, 2010. We are now back updating the blog with our newest projects and opportunies with silks in the shop. When thinking of something different and exciting to wear for your next event come see our selection for an original design and one of a kind wearable art. Can you believe this beautiful silk jacket was made here in Maine by our fabrics and our own couturiere seamstress, Sandi McKeen? Links to this post. Tuesday, March 31, 2009.

Wednesday, June 16, 2010. This spring we decided that we wanted to get chickens. We got three cute little chickens named sunny, shadow, and blaze. Unfortunately sunny got killed by a stray cat so we are done to two huge chickens now. He loved having sword fights and treasure hunts with his friends at his party. This is us at the capitol. It was kind of surreal being there. Sunday, April 25, 2010. Wednesday, April 14, 2010.